Friday, February 1, 2008

X-Tra Special Kids


Francis is our first X-tra Special Kid.
He has glomerul
onephritis - kidney
disease. We met Francis when he was 2
and in a charity hospital with a huge foot
wound that would not heal. With the help
of the U.S. Embassy Club, American Women's
Club and many others, we were able to get

needed surgery and, in the early days, help
with frequent hospitalizations for Francis. His kidneys are fairly stable
and now, 11years later, he leads a pretty normal life with

minimal help. Without huge help in those early two
or three years, Francis would not have survived. In the picture,
he's with his mom,
Annie, and his baby sister, Pauline. His
Dad, Roger, works as a taxi driver. Francis
loves to draw and hopes to be an engineer someday.



Twins Grace and Mercy have been our X-tra Special Kids
for the past 5 years. Now 14, they were diagnosed with
lupus....Systemic lupus erythmatosus...SLE when they were
only 9. Many around the world have helped us stand with

their family to help with the impossible costs of care. Their
father works as a janitor for less than $100 a month. Their
mom sells vegetables door-to-door for $2 a day. These are
good people.

Recently Grace was admitted to a medical study program
that will pay for her medical costs.We are waiting for news

of Mercy's acceptance. We will continue to help with the transportation to get the girls' to their treatments. I'm including two photos, one, when we first met the twins, and the most recent, with their mom, Letty. Grace is always on the left and Mercy is always on the right.

Carmina (Carmi) Macaventa is our neighbor. She is 16 and
will be graduating from high school this year with honors. A
wonderful girl, Carmi has dreams of going on to college and
becoming a businesswoman. She spends hours at our kitchen
table working on her homework with her
best friend, Jhing,
our cook, Belen's daughter. All those dreams are now in question.
Carmi was diagnosed with retinal pigmentosa right after Christmas.
She will be blind before she is 25. We are determined to walk
with Carmi and her family, finding ways for her to go on to
college, fulfilling her dreams. Her dad is a tiler and her mom
a homemaker. They have very little income, but are, again,
great people. We celebrate New Year's together every year as we
gather in the street that runs in front of our hom
es and welcome
in the New Year with all sorts of rockets, firecrackers, and sparklers.
She is our newest X-tra Special Kid.

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